Monday, March 29, 2010

He crawled!!!!

Isaac crawled today for the first time on all fours. He had army crawled occasionally but this was the real deal on hands and knees!! He crawled to his therapist Bridget. She asked how long he'd been crawling, and I was like he hasn't been. :)

I'm so excited! I like to think that the Creatine is helping. That and having a new little sister has forced him to want to be more mobile since I can't pick him up all the time now. I am just really excited for the little guy. I am going to try to videotape it and see if I can put it on here. :)

Thursday, March 25, 2010


The MRI went well - we should meet with the Orthopedist late April to discuss the results and talk about VEPTR surgery. Isaac was a flirt with the nurses - we even left him with his main nurse and went to lunch (it was a long, long, long, long, long day) which we've never even considered before, but he was seriously in love with her and happy as a clam. Oh plus she gave him toys and blew bubbles for him. He still weighs just 20 lbs. the little goofy man. His sister weighs 13+ at only 2 months. :)

Side Note: We put the little man in a toddler bed and he absolutely loves it. He gets out and plays with his toys. I really think its going to spur him on to walking. He cruises all over - but actual walking hasn't happened yet. This may be just the ticket.

Friday, March 19, 2010

Welcome Spring!

My boy is 20 months old - 20 months and 20 lbs. :) Finally! We are still on .4 mg hgh, but we are heading in the right direction. Our Dr. Hardin left Columbus Childrens' Hospital - so we are freaking out a little because the endocrinologist we saw on Friday was well, kinda douchey. Yep, that's the best way to describe him I think. So we really want to get the VEPTR surgery there but things are not looking good for us in the way of the PWS clinic - its going to be more like we'd see a hodge podge of whatever endocrinologist is there that day - and I don't think I'm wanting my kids future to be guided by a new doctor every couple of months. Oh and he isn't big on appointments all that often -so we lost the aggressive approach that Dr. Hardin advocated. Come back Dr. Hardin, or sadly I'll have to google stalk you and follow you to your new hospital with Isaac. :)

Monday, March 8, 2010


We started giving Isaac a creatine supplement this past weekend. We thought long and hard about it and decided to go ahead and give him a small dose. I'll update if we see any changes. Its all so scary when you feel like you are winging it with your kid's health.

Thursday, March 4, 2010

Splash N Play Wednesday

I went to Splash n Play Wednesday yesterday (I like the name) with Isaac and had a great time. A local physical therapy office allows the use of their therapy for an hour or so for a group of us with special needs kiddies. Isaac loved being in the pool and how warm the water was. He also liked being around the other kiddos. Splash n Play came about as part of the Moms In Common group that was started by my EI developmental specialist, Bridget Bailey (who is awesome by the way). It is a great group of ladies of special needs kids that tries to get together for play dates, lunch, etc. I am hoping to become more involved as I get better at managing 2.

It has a nice website too:

Oh and there is also a resource fair coming up here in WV - Check it out at