Tuesday, May 19, 2009

CDCSP Approved

We found out that the other assistance program we applied for (CDCSP) actually accepted our application - so we have in essence a medical card for the next year! So that is great. Having two insurances has been wonderful, but this is going to be sooooo good. It sure takes the stress off. Well at least until next year. :)

Wednesday, May 13, 2009

Waiver Denied

We got our denial for the Waiver application we had filled out for Isaac. MR/DD Waiver would give him a medical card to pay for his medical expenses. Since growth hormone isn't free, we were really hoping to get it so we wouldn't have to worry about keeping 2 insurances all the time.

Apparently PWS "is not an approved waiver diagnosis."

Of course its not. It is in a bunch of other states, why would WV be one of those enlightened states?? This is one of those situations that the rarity of it all becomes very very frustrating. Just like we did in the beginning when the doctors were clueless around here as to what was wrong with Isaac, we wish we lived somewhere else today.

Oh well, I believe we'll get it eventually. We just have to work a little harder for it. Go figure. :)

Friday, May 8, 2009

We've been sick :(

Since last wednesday Isaac and I have been fighting a nasty cold. Poor little Isaac sounds so pitiful, coughing and sneezing. The pedi said to elevate him, use the aspirator and saline drops, and just generally pamper the little fella. He is still in a good mood - I just hope he gets better soon! He doesn't like to eat all that much when he's stuffy and congested.

Happy side note: We did get a cool new highchair (FP Precious Planet) and that kid goes WILD in it. You could sit 50 toys on top and he will not rest until he's grabbed each one. He is holding his head so well and really reaching and working it. :)