I was told when he was first born I needed to apply for a "Katie Beckett" waiver - its amazing what has come about in our country due to this wonderful woman and her family fighting for their daughter to have a better life.
Isaac has been on WV's Waiver program for almost a year and it is amazing. Our waiver provides him a special needs medical card and access and funding for therapies, respite, nursing, all kinds of things. Its amazing what is available to my son through this program - Its amazing how much better you can sleep at night not worrying about whether your insurance will cover everything - and knowing that there are so many wonderful resources out there. I'm thankful to Katie Beckett and all that she accomplished for so many out there. RIP.