We got our denial for the Waiver application we had filled out for Isaac. MR/DD Waiver would give him a medical card to pay for his medical expenses. Since growth hormone isn't free, we were really hoping to get it so we wouldn't have to worry about keeping 2 insurances all the time.
Apparently PWS "is not an approved waiver diagnosis."
Of course its not. It is in a bunch of other states, why would WV be one of those enlightened states?? This is one of those situations that the rarity of it all becomes very very frustrating. Just like we did in the beginning when the doctors were clueless around here as to what was wrong with Isaac, we wish we lived somewhere else today.
Oh well, I believe we'll get it eventually. We just have to work a little harder for it. Go figure. :)