Barney Live

We went to see Barney Live in Huntington - and it was quite the hit with Isaac & Lucy. They were so excited. But you can't really tell from any of the pictures we got.

We couldn't get a single good picture of their sheer joy because they wouldn't take their eyes off of Barney to even bother to look at us.

This is more of the look we were going for. :)

A summer haircut

Pre-Haircut

After
He's not quite sure what to think.

I loved his curls but this should be a lot easier with all of the swimming in our future!

We went to the orthopedist on Tuesday in Columbus. I guess we are going to go with a surgeon there for our VEPTR adjustments. Our initial surgeon there trained under the man who created the VEPTR so it makes us feel more secure in going with his recommendations. The closest recommendation he could give us other than Columbus was Philadelphia (which isn't so close to us) so regardless of what we decide on the PWS Clinic issue we are staying with Columbus for the VEPTR.

We have a PWS Clinic appointment in early June. An endocrinologist who used to work at the Columbus PWS Clinic is coming to Charleston possibly to stay - and if so we thought about going with her. We never know. :)

Just a note on Isaac - his weight has been the same since Christmas really and he's grown maybe 2 to 3 inches. He's looking like quite the little grown up these days!!!

Getting ready to transition to preschool

We have a couple of meetings in the next couple of weeks to discuss preschool and have him evaluated. If he qualifies he'll start 4 days a week in the fall - for 3 hours a day. I'm excited for the little guy because he loves Sunday School so much I really think he'll love preschool too!! Its a really good preschool and we are hopeful he'll get in.

I'm a little nervous to transfer to private therapy this summer for the few months before we get to preschool but hopeful because he might start music therapy too. We are even looking into hippotherapy too.

Isaac is doing great in speech these days - he has so many new words! He is also calling his sister Lucy "Lu Lu" and his cousin Georgia "Ga Ga" - its stinking adorable!!!

We are having another boy - which we are terribly excited about!!! I can only imagine what Isaac and Lucy are going to think of him when he gets here!

Eek - the Orthopedic Surgeon is leaving Columbus!

So as if I needed another sign to fall from the sky and hit me in the head telling me RUN RUN RUN from our doctors in Columbus (Did I mention I tried repeatedly after our appointment to get the promised info from the dietician and I never did get ahold of her or any info? I think she must have left too) - our orthopedic surgeon that put in Isaac's VEPTR device is moving to Oklahoma only days after our appointment in June. Eek! Yeah so he won't even be doing Isaac's first adjustment - EEK! He was the last tiny string holding me there.

I'm one of those people that have trouble breaking up with doctors or therapists, even if they suck. It took me MONTHS to finally drop Isaac's first PT and move on to the much better PT - and I always say "Why didn't I do that sooner!" You'd think that trait would mean I'm easy to please right? My husband would likely disagree.

I shouldn't resist change. I want to do what's best for him. In this PWS community though there are so many different opinions/ideas/approaches - I feel lost a lot of times. I just hope we can find a good fit and soon!

Enjoying Spring

Isaac enjoyed his cousin Georgia's 4th Birthday party!


Lucy and Isaac playing with their cousins Georgia and Emma



They want to go outside all day long! They are so mad when it rains!

He's not really happy with the glasses :)

We've been having a great time enjoying the outside this spring - hunting easter eggs, helping mommy weed her flowers, going down the slide & basically running wild!

He hasn't gained any since our last appointment and he's most definitely sprouted up there in height!!! The higher hgh dose is really making him grow!!!

Black Bean and Pineapple Quesadillas

http://www.fruitthewayyoulikeit.com/index.php/fruit_recipes/Eat-me/Simple-suppers/Black-Bean-and-Pineapple-Quesadillas My recipe is not exactly as in this one - but close. I don't use the coriander. I use a little cumin and cilantro. I use whole wheat tortillas and low fat cheddar cheese. I also put lettuce and diced tomato inside after Ive finished cooking them (yeah I pry the cheesy thing back open and stick them in there because I can't get Isaac to eat that stuff on the side or by itself - He doesn't mind it in the warm gooey quesadilla. I've also used red beans and he liked that just as much. Its fast and easy too!!

Hey PWS mom's - We need to share our Healthy Meal Ideas!!!

Seriously, I feel like I get so boring with the same old same old! Wouldn't it be great if we posted just one recipe every week -or even couple of weeks - of new good stuff we are making our little ones to eat. Seriously, because I'm not that creative to delight every day! I get great ideas for other stuff from you PWS mom's out there - why not share what healthy meals your little one's love!!! Anyone in?? Mandii from Adventures in Asherland is onboard! She may even devote a part of her blog to it - which sounds great to me!!