We had the pen back when he was 2, but complained about it leaking (as in there wouldn't be enough in there for the last dose) and were switched back to mini quicks. Apparently at that time, many others had the same problem. So ever since we've been on the mini quick indivicual shots.
We switched to the pen almost a month ago, and maybe we are just paranoid, but we worry he's not getting all of the shot. With the mini quick shots, it was simple. There was no smell, no drop on the end of the needle when you pull it out. But with the pen, no matter if you hold it in his leg for 10 seconds or 15 seconds or a year, it still comes out with a drop on the end, and it still smells. I'm just curious as to other's experiences - if its something to be concerned about. The dosage he's on right now doesn't come in the mini quicks, so we had to go to this for the increase. So if anyone has any guidance I'd appreciate it.
Also, we belted the refrigerator. Isaac has been getting in the fridge but not really for the food. Mostly just to play and nose around. So we had to keep him out - and ended up cutting a canvas belt and strapping the two fridge doors together. The belt is attached to one of the doors by a plastic strap so it won't fall off. But like everything else with this syndrome, we always worry its the worst, the beginning of the monster. We have to be prepared I guess.
Enough rambling, for once all 3 of my children were napping so I decided to post - and of course 2 of the 3 are now up. :) I will post pictures of Isaac's 4th birthday soon!!!
2 comments:
We have always used the pen. I just figured that if her blood work says she is on the right dose than I don't worry about it. As for the 'left over' we just either trash it if it is .2 or under and if we end up just .2 or so short I just add it to the next dose or two. We are still only on a dose of .3 so it has worked so far.
We have that issue as well. My 14 year old son has been taking it for a month and we are still feeling our way through all of this. Also, when I put a new cartridge in and tapped the metal part, we had drops come out of the needle for about a minute. Waste!!! The nurse did not have that when she showed us. Has that happened to you and what should we do? Thank you!
Michelle
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