I've been hesitant to post about my little fella's um WALKING, but listen people he just turned 22 months and he's all over the place. He took the first few divey like steps weeks ago. He took 3 for his OT Sonya, and then a few more for his therapist Bridget, but I never really "counted" those steps I guess. I guess I was waiting for him just to take off on his own and do it. Week after week he's become a little more stable. Today in PT he crawled across the room pulled himself up to the ottoman and then proceeded to take 9 unassisted steps to the PT. This unprovoked walking is quite new and quite AMAZING. He really is walking. He's done it all day, from ottoman to chair, from chair to me.
Always before he leaves one of our hands and is coaxed into walking to someone or something, or to chase after something he wants. To see him actually just take off walking on his own seriously brings a tear to my eye. I didn't really get emotional while the PT was here, but I am a little now thinking about it.
I just think back to when he was born and we didn't even know what he had. We didn't think he'd ever walk. Then we got a diagnosis of PWS, and still thought, what will his walking be like one day and when will it ever happen? That seems like yesterday and to look at my little goofball sitting in the floor pretending to read the little engine that could (babbling to himself and pointing) right now makes me really proud. He's come so far and is doing so well. I know the food part of this disorder is still to come and still pretty messed up if you ask me. But not one single thing we've had to go through so far has been bad really, just different.
My mom has a sign up in her house that says: God doesn't change the circumstances of our lives, he just changes our attitudes towards them. I guess today I'm feeling especially blessed. :) Of course call me after he has this VEPTR surgery August 18th, and I'm sure we'll be a mess, but oh well, its baby steps this process.