Wednesday, April 8, 2009

Helpful Support Websites and Blogs

I am constantly searching the internet for other stories of children with PWS out there. I love following Hope's story as told by her mom who is an amazing advocate for her Hope and for PWS in general.

http://holdinghopechasinggrace.wordpress.com


I just found this site. I really like the stories page. The info is very helpful and I wish I would have seen this when we first got our diagnosis.

http://www.pwsnotes.org/Main_Page

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