Thursday, August 5, 2010

blah

So Isaac's tonsil surgery is going to be october 4th - he had to wait 6 to 8 weeks after the first one to recover. They couldn't do it at the same time because there was no ENT surgeon available on the 18th (when his back surgery is scheduled). Anyways it stresses me out either way. I wasn't wanting him to have both at the same time really. I know it really won't be that long - but boy we miss the HgH. Right now I basically let him sleep with me and Eric and stare at him snoring the whole night. Good god, and to think that the HgH can make them grow back again. So crazy.

We leave this evening to go to columbus - Tomorrow he has to have his pre-admission testing done. Tomorrow I turn 30. oh joy. I think the combo of the back surgery and the tonsils - and the last day of my 20's just has me in a tizzy. :) Having a special needs kiddo really aged me like 30 years in 2. :) I have the white hair to prove it. He's cute though so I guess we'll keep him.

Tuesday, August 3, 2010

Tonsils & Adenoids OUT - woohoo!

Ok so we knew it really before we even went to the ENT today - but the boy has to have both out and I think its going to help him SOOOOO much. Hopefully everything will work out and he can have them out soon and get back on that growth hormone!!!
Of course the lady mentioned asking the orthopedic surgeon if we can take them out at the same time he is getting his back surgery and that kind of made me want to puke just thinking about my boy going through all that at once - so hopefully not TOO soon I guess.

Saturday, July 31, 2010

Thanks Desirae for the Blog Award!!!


Desirae from Our Life with Prader Willi Syndrome in Las Vegas (http://pwsvegas.blogspot.com/ - sorry I'm not great with the linking) gave me my first blogger award! So now I'm supposed to share 7 things about myself as part of the rules:
So hmmmmm . . .
1) I actually enjoy watching Yo Gabba Gabba along with Isaac and Lucy.
2) I have more freckles than I know what to do with - and I promise I wear SPF 4 million daily.
3) I have needed to have my wisdom teeth taken out since before Isaac was born in 2008 but I keep putting it off, and no they are not giving me any extra wisdom by hanging around.
4) I love "Arrested Development" and cannot wait for the movie to come out!!!
5) I want an iPad so badly now that one of our therapists is using one with Isaac.
6) I could live off of chips and salsa - I'm sure of it.
7) I have been trying to lose the 40 lbs I put on with Isaac since well forever (except for that pregnant with Lucy period) and I cannot seem to do it and the fact that I can't lose weight without all the PWS issues makes me so panicked about Isaac and his future food issues that I want to stress eat (which my husband said is absolutely silly, so put down the food angie).


Thanks for the award Desirae - I appreciate the nod!!!

So I am going to pass it on to Adventures in Asherland http://www.amandagatkins.com/ and The Fields Triplets http://fieldstriplets.blogspot.com/ if they would like! They have great blogs that you should definitely check out!!!! Oh and check out Babies with iPads too - Bridget knows she's awesome so she doesn't even need an award :)!!

Friday, July 30, 2010

Babies with iPads: I. signs using the iPad

Babies with iPads: I. signs using the iPad: "My video skills are for the birds so sorry. I is finding animal pictures on the iPad and signing the animals as they made the sounds. He ..."

Thursday, July 29, 2010

And not to leave Miss Lucy out




Isaac doesn't think she's all that funny



Not fair, this one is rotated on my computer I swear


More summer pictures

Here's a few more summer pictures of the boy
Playing with Georgia and Emma the day after Bible School


Having fun with Aunt Debbie (Cowgirl Debbie for the day)





Ask Isaac about the horse and to this day he gets a look of PANIC . . .


The day after his birthday tearing through all of his presents again :)





Friday, July 23, 2010

Frickety frick - we have sleep apnea




Well we have to stop the HgH for a little while so we can go for an ENT consult and see about possibly getting his tonsils/adenoids removed. He has an obstructive apnea. We want what's safest for him - no doubt - but its just sad to go off his wonder drug. :) It makes me think back to life without growth hormone . . . :(