Happy Birthday to my favorite boy!!!

Happy 2nd Birthday Bubby - we had such a good day with you today!!!! I hope you loved it as much as everyone else did!!! You had so much fun playing with everyone!!! I can't believe we've had you for two whole years already!!! We love you!!!

He's Looking Good!

So the boy is 34 inches tall (in the 55th percentile) and 24 lbs (for the first time in his entire 2 year life on the charts at the 9th percentile) and they were very pleased with him! We didn't see the geneticist at this appt (who we like) but the endocrinology doctors were nice. They didn't increase his HgH - he just hasn't gained enough weight to do so. The doctors were "nice" - I hate to get locked into that, I'll keep people around longer than I should because they seem nice enough - I hate to "break up" :) My husband is thankful for this trait in me and he kind of has it himself. :) I miss Dr. Hardin - she was awesome - these people are just ok. I feel like its a wasted drive somewhat. We do like the orthopedist that is doing his VEPTR surgery in August so we are kind of stuck in a relationship with Columbus now.
The dietician didn't really give any guidance - no charts, no numbers, no suggestions (other than to limit gatorade and juice, and sugary things like that - to which I wanted to sarcastically reply, oh really?) She said it seems like he's doing fine. I guess I should just be pleased and calm myself, but I get a little testy these days like I'm a constant advocate for the little man. Like I need to fight for him. Enough complaining! He's doing wonderfully though & we can't wait for his big party on Saturday!!! We still have to have a sleep study in Columbus on Thursday night and I think I'm going to take him by myself for the first time - so wish us luck!

PWS Clinic in hours

Yeah so I'm up still trying to get things done and we have to leave in like 4 hours to go to Columbus for Isaac's PWS clinic appointment - I'm betting I'll be regretting the lack of sleep later. :) But I am excited to show him off at our appointment - He's done so much since we last saw the doctors! I really am proud of how far he's come. The PT said this week that his legs were getting more definition and getting much bigger. The creatine is helping (even though its not a daily thing, I still worry) and he just seems to be doing so well. We still haven't had the sleep study done that we were supposed to before our appointment, in fact its scheduled for next week (yay two weeks in a row to drive to columbus, oh joy) - but we are hoping that if all goes well with that they'll agree to up the Hgh. Well I hope this makes sense, because good lord I'm tired.

My tribute to our beloved Senator Robert C. Byrd

Ok, its a little wacky, um maybe a little messed up to post this. But when my little boy was born the only thing I could think of was my god he looks like a little Robert C. Byrd. A little sickly Robert C. Byrd. It was the only thing that got me and my husband through that first week I think was to laugh at that - yeah I know, what a weird sick sense of humor we had. Good lord we even looked up what the C stood for in case we needed to name Isaac that. We did not (since it was Carlyle :) but it kept our mind from thinking wow, what is wrong with our poor little man.

Robert C. Byrd passed away this week at the age of 92. I, like every other West Virginian, loved him. Here is my tribute to him. :)

Countdown to 2

I can't believe it but its almost here! My little man is going to turn 2 on July 17, 2010. I decided to try to branch him out of Elmo world by having a Mickey mouse party, but the boy isn't wavering from his Sesame Street fascination. Its so cute. The only other show that really gets him going right now is Yo Gabba Gabba. The boy really loves to dance. :)
This week he's getting plenty of bonding time with his cousins, Emma and Georgia while they are all going to vacation bible school with Grandma and Grandpa. They have been swimming nearly every day and trying to wear each other out and get good and sleepy before they pump them full of sugar and throw them in with a bunch of other wild little kiddos at bible school.
He's getting braver walking around the house from thing to thing. I'm pretty excited at that and at how much he seems to understand when we are talking to him. He is trying to use more words, but the Speech Therapist really believes he'll take off as he gets stronger trunk wise. I'm excited for him and I'm trying not to go all overboard on the birthday - but I tend to do so when it comes to him.
Lucy is rolling all over and spinning in circles and eating like a little piggy. She's my sweet little chunky girl. She really likes her brother and gets all excited when he tries to talk to her. She's already saying ba ba ba and screaming loudly. She's going to be a talker and just wear Isaac out I think.

A little rambling thought

I want to preface this by saying I love love love love love my babies. I love them both a whole lot. I have to say that this second one is just growing up way too fast and its blowing my mind. Having Isaac as our first child was such a completely different experience. I had the chance to appreciate every little thing with him. My brother joked with me once that I clap for Isaac even when he poops, but you get the idea.

But with Lucy (who is *gasp* already 5 months) its like every day I look at her and she is doing something new. And its all so easy for her. She is already scooching herself back on the carpet and spinning in circles. She basically does baby pushups all day and smiles and laughs about it. :)

So it makes me think, wow, how hard things must be for Isaac. I never felt that way before about Isaac you know, but now that I have a constant comparison, its like I feel sorry for him? Does that make any sense? I know Isaac is doing so great and the happiest little guy on the planet, so its not like I have any reason to feel that way for him, but seriously this little pudgy girl is going to pass him up in no time. I feel bad he has to work so hard for everything, when Lucy doesn't have to.

I know that will always be the way it is and I need to deal with that. I had a PTSD like episode right after Lucy's birth where all that surrounded Isaac's birth came back in a bad bad way. I was terrified that it was all going to happen again and seeing what is "normal" put me in a tail spin. Isaac was my normal, and it took Lucy to show me how different he actually was. I'm in a much much better place now. But sometimes when Lucy does something awesome, its as if at first I don't get excited, but I'm like wow, I didn't even have to work with you on that, you just did it. Its not the same celebration, its more like oh, that's how its supposed to be. Now I don't want you to go around thinking that I'm not excited as all get out about ol Lucy Lu because I am - she is total sunshine and I constantly kiss the pudge's face, it will probably fall off soon from over-kissing - I just celebrate her milestones much much differently I guess.

Anyways, as if there really is such a thing as "normal" :)

Been MIA. Back from the beach :)

Isaac and Lucy had a great time with their cousins and family at the Beach this week. We went to Rodanthe, NC on the Outer Banks. The weather was great and the kids loved swimming. Here are just a few pictures. Lucy turned 5 months today which is insane. And its only a matter of weeks til my precious little boy turns 2! Sorry for the sideways pictures once again. :)